Hope for life!

 
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Logo The Canadian Foundation - Leukodystrophy

The ChildrenThe ChildrenGet to know our children 
The FoundationStarted by Alexis Verville-Trailleur’s parents, who suffers from 4H Syndrome, a form of leukodystrophy, the Leukodystrophy Foundation’s objectives are to promote new treatment options in order to provide hope to children suffering from this severe degenerative disease as well as offer psychosocial help to affected families.
Luc Langevin Our spokespersonLuc Langevin Our spokesperson
ResearchResearchProjects to support hope!
Family SupportFamily SupportFind resources and services
I Support the Cause!I Support the Cause!Donate
LeukodystrophiesLeukodystrophiesFind out more about the different kinds of leukodystrophy
Organize a FundraiserStay informed of the Foundation’s activities
FundraisingParticipe in the fundraising campaign for leukodystrophy

“We learn to enjoy each day’s beautiful moments and we understand that hope is essential for our happiness.” A quote from Émilie, Xavier’s mother. Being diagnosed with Leukodystrophy is a huge shock for parents and children. The Foundation supports families during this trying time and encourages them to not lose hope. ”

Being diagnosed with Leukodystrophy is a huge shock for parents and children. The Foundation supports families during this trying time and encourages them to not lose hope.

Here is some useful information.

 

Ressources et services

logo deuil jeunesse

Deuil-Jeunesse is a valuable partner for our Foundation. It is a professional intervention organization in Quebec that helps young people and adults through illnesses, the disappearance or death of a loved one, or other losses due to parental separation, abandonment, or adoption. For help, please contact deuil-jeunesse.com

 

Helpful Links (French only)