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The Children
The Foundation
Our Spokesperson
Research
Family Support
I Support the Cause
Leukodystrophies
Activities
Financing Campaign
Contact Us
Media
French
Homepage
Contact us
Medias
Donate
Facebook
The Children
Get to know our children
The Foundation
Started by Alexis Verville-Trailleur’s parents, who suffers from 4H Syndrome, a form of leukodystrophy, the Leukodystrophy Foundation’s objectives are to promote new treatment options in order to provide hope to children suffering from this severe degenerative disease as well as offer psychosocial help to affected families.
Luc Langevin Our spokesperson
Research
Projects to support hope!
Family Support
Find resources and services
I Support the Cause!
Donate
Leukodystrophies
Find out more about the different kinds of leukodystrophy
Organize a Fundraiser
Stay informed of the Foundation’s activities
Fundraising
Participe in the fundraising campaign for leukodystrophy
Medias
They’re talking about us in the media.
Read the newspaper or watch our video capsules for more information about the foundation.
Television Coverage
Radio-Canada coverage on rare diseases (French)
TVA coverage on rare diseases (French)
Reportage de Global TV (anglais)
TVA coverage on caregivers
Journal de Québec coverage (French)
Radio-Canada coverage (French)
Interview with Laurence Jalbert (Télé d’ici) (French)
Interview with Pierre Lavoie (French)
Program «Une pilule, une petite granule» (French)
Newspaper Articles
Pedestrian cycling benefit article (PDF) (French) (pdf)
Minister Bolduc’s announcement article (PDF) (French) (pdf)
Minister Bolduc’s announcement article (PDF) (French) (pdf)
Les Affaires newspaper article (French)
L’Autre voix article (French)
L’Autre voix article (French)
CHUM article (French)
CHUM article (French)
Journal de l’Île article (PDF) (French) (pdf)
Québec Hebdo article (French)
Journal de Québec article (PDF) (French) (pdf)