Xavier
Barthe
Born
November 7, 2006

Xavier Barthe (9 years old)
Born November 7, 2006

4H Syndrome

My name is Xavier and I am a young boy who loves to have fun. I like playing with my sister Léanne and my cat Rigolo. At my school, I have friends and I like participating in class. I am like all of the other boys around me even though my story is quite different.

I am the oldest child in my family. My parents were so excited when I was born. At just a few months old, they noticed that I wasn’t as strong as other babies and that my motor development was lacking. Regardless, when I began walking at 2 years old, my physiotherapist and doctor reassured my parents that everything was fine and that I would be back to normal. I continued to have motor development delays. I progressed slowly and with a lot of effort. In February 2013, I caught a flu that caused me tremors and impeded me from walking for several days. I went to the hospital and an MRI revealed that I suffered from an incurable degenerative disease. Since then, we try and enjoy all of life’s beautiful moments and understand that hope is essential to our happiness.

Xavier