Jasmine
Daigneault
Born
Born May 23, 1997

Jasmine Daigneault (19 years old)
Née le 23 mai 1997

Aicardi-Goutieres Syndrome

We would like to introduce you our daughter Jasmine, who is 19 years old. The orphan disease of our eldest daughter, Jasmine, was discovered after 14 years visiting several specialists: Aicardi – Goutieres is a degenerative genetic disease in the Leukodystrophy group. The affected gene was discovered in 2007 as the origin of her disease.

Some children with Leukodystrophy die very young and some live longer. For these children and their families, new research gives us hope for a better future. Leukodystrophy research must continue for those who have an identified syndrome like Aicardi-Goutieres and also for those still undetermined. We thank the Leukodystrophy Foundation for its significant involvement in research.

Loiselle Daigneault Family

Lyne et Alain

Jasmine, 19 years old

Alice, 11 years old