Éli
Lechasseur
Born
March 9 2006

Éli Lechasseur (10 years old)
Born March 9 2006

Undetermined type of Leukodystrophy

Hello,

My name is Éli and I was diagnosed with Leukodystrophy at 5 months old. It was a huge shock for my parents and family. I appeared to be a normal little boy. But this disease has stricken me with severe developmental delays: I can’t speak, I can’t walk, I can’t sit or stand on my own (due to a lack of strength).

Regardless, my state is currently stable. I communicate with my parents via sound, gestures, with my eyes, and most importantly with my beautiful smile, as my parents would say.

I have Pelizaeus-Merzbacher disease. Specialists are still researching because the cause of the condition is still unknown.

Thank you for helping with the research,

Éli